 |
| 12/2018 |
 |
| Jinn's tiny hand & Daddy's hand 12/2018 |
 |
| Jinn's foot and daddy's foot 12/2018 |
|
|
11/18/2018
31 years old but She is small and she act like little child
maybe like 3 or 4 years old
|
 |
| Jinn Young has very small foot |
 |
| Her toe got turned and all odd size...... |
 |
| both feet |
 |
| This is all she can stretch |
 |
| Both arm doesn't stretch completely so he Palm can't turn to above. |
 |
| So Cute Jinn's feet |
 |
| Maybe Jinn's hand and feet size only like 4 or 5 years old. |
 |
| about 3 month old / Yi Jinn Young |
February 24, 1987 - 5.31 lb (2.4 kg) Jinn Young was born with very small. as we expected, but she was so small even afraid to touch her, has to be very careful when we hold her in our arm. She need to stay incubator ICU room for 1 month. While she was in there they did all the check up of her and doctors from Seattle came up examined and they told us that She born with syndrome that we never hear about and most doctor not know about it too, called that Cornelia deLange Syndrome.
Jinn Young born with Cleft Palate and they told us that she will have side effect with mentally and physically. With State health department organize a team for Jinn Young health condition with doctors like cleft palate, dentist, ear and nose, pediatric... then start meeting and discus better taking care of Jinn Young.
March 19, 1987 - Jinn Young came to home after a from hospital. She was still so tiny. We had very hard time to feed her milk even we lean how to care from hospital when she get discharge.
Because she has cleft palate, her mouth is opened with nose, she can not suck or drink milk ether,
we has to squeeze the bottle to feed he milk and most drips out back thru nose and she was hard to breath while eating. we has to feed often like every couple hours. We did this till she get cleft palate surgery. She had eating problem even after surgery but she get much better. She still do eating not drinking water.
Jinn Young was small in size but she did well with crawling and start walking as other baby, she do make sound but she cannot speak.
October 3, 1990 - after many times visiting with doctor she has surgery and fixed Cleft Palate.
 |
1 st birthday
|
She was small but she did all growing thing as other baby does, like... seating, standing, walking...
She was very active.
 |
| 3rd year birthday |
 |
Everybody was so exited when she use spoon to eat food.
|
 |
| 4th birthday |
 |
5th birthday party at Jinn's kindergarten class at school
|
Jinn Young did went to pre-school and kindergarten as other kids, the school bus came to front of our house pick her up and dropped off after school and most of all some how she likes to go to school most of time.
|
|
6 years old, after she had heel surgery...
she has to walk with toe, because her achilles heel was tighten.
Much better walking after heel surgery.
|
 |
| She wear the leg supporter for about 1 year |
 |
| 7 years at school |
 |
| 11 years old, School picture |
 |
| 13 years old |
 |
| 18 years old, high school graduation |
We have very good school system here in Alaska. Jinn attended all the grade every year in special class with special educated teacher because Jinn was kind of severe condition / nonverbal communication, not understand, hard to walking, in diaper, anxiety....
She went through 12 years in school and issued certificate from high school and she got transfer to Adult Community Transition Class witch they learn how to be independent in community
She get release from school district after 21 years old.
 |
| Jinn Young's Graduation picture May 2005 / 18 years old |
We tried and Teachers tried all 12 years in school year to train to use toilet, but we did not success and she still wear diaper all the time.
 |
| May 2006, Jinn Young's brother High school graduation |
 |
| 2007 She can be a model |
 |
| 2013 |
 |
| 2014 |
 |
| 28th Birthday Cake 2/24/2015 |
 |
| 2/24/2017 30 years old |
 |
| She can't see with right eye at all |
 |
She like to play with her finger stick to her nose and making noise
|
 |
She look like enjoying reading..... but she just looking at picture kk
She likes book that has lots of picture and magazine and she like to collecting pamphlet while in shopping center
or where ever she go and look through at home. |
 |
| She got pose for pictures. She want us to take picture of her and she will watching over and over later. |
 |
Jinn likes to watch picture of her if I saved all the pictures in the computers while listening K-pop music.
She sometime singing and dancing too. |
She making sound like baby play. We noticed that Jinn like to eating her rice on the floor with flat down on tummy. We set her meal on dinner table with all others, she set down on table with us a few minutes and she carry her dish to floor eating on her tummy down. At first, we though she had bad behavior she leaned from somewhere? but where? but we learned that she was comfortable in that way because her hands not turn all the way as we do, I guess she learn by herself easy to eating with her arms limited mobility. Jinn's hands turn only half way, witch is her palm of her hand can't turn completely toward upward.
 |
| Jinn enjoy riding the cart since she is hard time with walking on gravel or eneven dirt road at vegetable farm. |
She crying for help with scare as above pictures
Jinn Young can't walk well on grass.
with small feet, maybe she don't has good focus...
She need help while on dirt road, gravel road, up hill, down hill, stair.
She even afraid to crossing sunny to shadow or shadow to sunny, sometimes she crawl to across between.
 |
Picnic to Anchorage Zoo 2017
caring her favorite toy the digital camera, she took pictures many pictures that we don't understand, like someone's butt.... she like to took a picture of me but only my back and position me where to stand, why? I don't know.
|
 |
| 2018 play and having good time with a niece visiting from Korea |
No comments:
Post a Comment