This is My daughter who is 31 years old with Cornelia de Lange Syndrome
(2018)
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| Summer 2018 |
These days Jinn has been very well behaved. She is calm, listens well, plays on her own, and sleeps on a regular schedule.
Our daughter Jinn was diagnosed with CDLS (
Cornelia de Lange Syndrome) when she was born. Initially, it was determined by doctors that her life expectancy would only be a few years due to her condition. Miraculously, she is now living a healthy life of 31 years and counting and we are very thankful for this.
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| Taking a quick break at Costco |
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| November 2018 |
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| A walk in the park with mom and grandma (2018) |
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BBQ time with the family ( Summer 2018)
Although Jinn cannot speak, she enjoys company of friends and family.
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Jinn loves drinking hot chocolate at Starbucks and spending time with her cousin visiting from Seattle.
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Jinn loves going on drives. She looks very cute as she looks at her camera with her visor worn sideways.
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One summer day, we are taking a walk after a big meal.
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| Due to her small feet, it is hard for her to walk long distances which is why she wants to ride in the shopping cart. |
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Taking a rest after a stroll. Jinn loves spending time with her dad.
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This is Jinn's favorite spot. She likes to sit and look out the window. Whenever someone comes over, she greets them by banging on the window.
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